Why do we see more cases of autism these days?
Many people are aware and would like to know about it and take benefit of being different... concessions, reservations, tax benefit.
Increased neonatal survival with serious brain insults
Growing prevalence of various genetic and epigenetic diseases due to diverse enviornmental factors
nuclear families with reduced human to human interaction
Screen based and screen dominant that is visual entertainment with repetitions starting at early age, takes the child away from verbal and social world
Schools and experts forcing for certification in children that behave different or delayed
Serious Need for Understanding autism is more human way!
Each person who deals with autism labelled kids is only hungry for label and loves to give every component of the problem some name and parents get confused, scared, worried and start googling. Parents are often seen running around for BERA test, genetic test, experts like Reflexology, NDT, sensory expert, Apraxia expert, SPD expert, hyperbaric OT, stem cell therapy, special diets and many foolish methods which are heard by hearsay from random people. REMEMBER, RUNNING ROUND OR LABEL IS NOT IMPORTANT, WHAT U DO AND START EARLIEST IS IMPORTANT, KEEPING REST IN WAITING. Following is a simple way to understand autism in just 5 lines.
"AUTISM IS A DISORDER OF CONCENTRATION, CONNECTION, COMMUNICATION, CONVERSATION, COGNITION, COORDINATION, CO-SOCIALISATION... ALL THIS IS A SOFTWARE OF THE BRAIN, WORK ON WHAT NEED TO BE DEVELOPED.. THAT IS SOCIALISATION AND COMMUNICATION ; IT CANNOT BE BUILT BY PHYSICAL EXERCISES, OR OBJECT BASED ACTIVITIES OR PHYSICAL UNSTEADINESS; BUT BY HELPING THE CHILD BE MORE SUSTAINED RECEPTIVE BY IMPROVING SITTING LOOKING LISTENING LEARNING FOCUS SO THAT CHILD CAN INTERACT FACE TO FACE WITH HUMANS, CONNECT WITH HUMANS AND CONVERSE WITH HUMANS."
Who is an autism expert?
Is the one who knows and understands autism and attempts to help parents and researchers dealing with autism, having an experience of a decade or more than 1000 cases with autism with improving outcomes in children with autism.
There are a variety of experts who feel that autism is a specialty to be dealt only by the specific expertise. this is because most experts try to understand autism only form the perspective of what they have been taught and not what the case is. An expert who doesnt keep himself or herself updated with newer knowledge and researches in improving potential social normalcy in autism kids, is actually of noi us eto teh sufferers.
A huge number of experts mostly NGOs work towards awareness of autism alone and not towards its interventions.
There is a need to understand autism in a different perspective. working in autism kids is more like a personality development of the child by following in the same sequence with at times overlap with adjacent stages of development adding sense to life and pulling the child to social world by:
initially making the child aware of non living and more so living world
helping the child connect with humans face to face and eye to eye, making the child receptive, responsive, reciprocating and responsible
helping the child understand, copy and interact with family and humans around, the A to Z social members
helping the child learn to communicate and copy expressions for need and beyond needs
helping the child understand and copy the activities of daily loving and living
helping the child understand social cues, manners, rules and interactive social sitting games
helping the child understand copy process and produce the verbal communication, conversation, composition, syntax and pragmatics
helping the child learn education, focussing on listening, reading, writing and complex hierarchial understandings
supporting the child to learn the way child can be taught and also by the way child cannot learn easily
adding diversity difficulty differences and dynamicity at every stage of learning and life to help him become a better personality shaping the future.
Pediatricians - neuro developmental pediatricians are key in assessing classifying, investigating for treatable causes and components of teh disorder in addition counseling and managing these kids and its various medically manageable developments, complications and neuropsychiatric and behavioural complications. It is no longer an illness to be managed by psychiatrists but a neuro developmental disorder which can be attempted to put in order with the help of as needed following:
Understanding the developmental delay or deficit and modulating it with medications and therapies,
Therapists: Occupational and sensory integrational therapists
Therapists: speech therapists
Psychological and genetic counselors
key principles in autism reversal:
1.Dont be Special, turn into social
2.To make social, switch from object world based teaching to people and action based teaching
3.To develop communication; switch from screen based learning to body language based learning
4.To develop language, switch from seeing-doing activities to listening talking activities
5.Sitting tolerance increases by sitting activities with sensory breaks as per childs requirement.Making a child continuously jump and run will make him expert in jumping and running
6.Constant hugging kissing and carrying skin to skin, make the child get physically pampered and stubborn. keeping your child 2 feet away face to face helps develop eye contact and social communication
7. If you dont make rules for child behaviour, child will start ruling you and throw tantrums to change your behaviour.
8.Children copy what they see, hear and feel. Dont let them see ,hear and feel what u dont want them to learn, for example saying no or physically handling the child or shouting to grab attention.
9.Dont teach letters and alphabets,or what is this type of teaching; they are for picture recognitions. Teach in sentences, it means language. Dont ask questions, just go on narrating.
10.Music/rhymes is good only for momentary solo pleasure. Switch to lyrics and language if you wish the time to be utilized for learning and communication.
Dr Kondekars ten commandments on Autism reversal AS ABOVE
*Understanding-Goal Directed Approach :*
Dear Parents Make a list of all things u feel will be impossible in your kid and work towards it. if you believe nothing is impossible, list things or issues your kid has difficulty in and list what all you did for your kid for same issue for last 3 months. list what all you made possible.
if you can list all changes you brought in last 3 months, discuss with expert about next step and how rapidly it can be achieved.
if you are stuck at a step for more than 3 months, we are losing time and raise an alarm.
*Accept autism, don't accept disability, work towards enabling same*.
Understand and re understand the issue differently and work towards it.
Its true that you know best for your kid, but *its equally true that u don't know what is best for others kids* ;
Parenting an autism kid since ages, doesn't make you an expert for others kids unless you get through details of thousands of cases.
So unless you are expert *don't start teaching other parents,* you may be giving some information halfway which is true only for your kid.
It's not a routine parenting issue in autism.
*Dont give up your desire to learn and do something new every day.*
its true that home therapy is needed, but *don't make your house a therapy center with various toys and activities.*
Home therapy in true sense will mean practicing tricks with home based day to day objects and acts.
if you feel you have learnt all tricks of OT etc , and you can teach OT to any kid with autism or take care of your autism kid for years, *you are wrong*; it just means that you dont know the next step. Sometimes it's good to accept we are wrong, then only we can *see the ray of hope.*
When we work with medicines and therapy *we develop connections and cross connections to processing centers;* which shows extended level of communications in the form of development in various *domains of understanding* including knowledge, nonverbal communication, behavior, emotions, socialization, interactive games and talking and writing skills apart from physical things. **
*Leaving things half way will develop connections half way and loose connections always die.* ** Often with a spark.
*Development is decided by connections, speed is decided by myelination.*
At least keep a *minimum goal of readiness for primary school* admission over 2 year phase.
Then divide them into steps.
*Later the age of intervention or medicines harder will be recovery or development of milestones.*
Work towards reducing severity of level, A child who can take main stream schooling for primary usually is *independent* and can be educated and trained to take care of family responsibly , when he or she grows up.
*Remember every one has limits.. even God too does.. we all are attempting to look beyond the perceived limit and find a higher achievable limit, in the best interest of the child, when we walk towards horizon attempting to touch the limit, the limit too moves ahead.*giving us hopes to improve further every month Dr Kondekar #MakingSense
I want all parents to understand when we are looking for improvements, what all changes we may look for. A keen parent would like to note down minor details about every change on weekly basis rather than saying sir no improvement. Other parents may have similar ideas but if u don't note down In details, it's not easy to compare the improvement across time line. See the monitoring chart. Given at website neuropediatrician.com OR ASK whatsapp 9869405747 for getting a serious idea to see objective change.
The improvements can be minor when we expect changes every week , it's always better to note down.
*Try to list changes as per gains since last visit and goals till next visit*
Also you have headings
activities - living, household, skills and
gross /fine motor
concepts Pre math concepts
Abstract concepts etc
Medicines in autism : As I told u most of them are raw material or connectivity and brain speed related medicines used for building block for forming bridges in brain.
These combinations will reduce or change every month after every weekly titration across whatsapp.
After first positive response we follow gradual reduction in nutrients...systematically.
Half hearted efforts will give incomplete response, more so in a situation where world say nothing can be done except exercises.
Physical Exercises only effect the physical input but has no major role in processing connections needed for connection, communication, conversation in brain.
lets turn every child into an auditory learner and dreamto make the kid an orator.
One who doesn't listen, cannot talk. one who keeps on doing seeing and doing activities most of the times is not working for listening and talking during that phase.
WHAT WE KEEP ON DOING, PERMITTING AND PROMOTING, BECOMES PERMANENT.
CURIOSITY, NOVELTY, DYNAMICITY, DIVERSITY, DIFFERENCES, DIFFICULTY AND DETERMINATION IS MUST FOR ANY HIERARCHIAL LEARNING IN AUTISM KIDS.